Transplant Athlete
The Transplant Athlete blog can now be found at Transplant.TransplantAthlete.com
Your Daily Inspiration
I haven't felt like blogging lately. The truth is I have two really good days a week (Thursday and Saturday and sometimes Sunday) where I try to get as much done around the house as I can. I don't feel very inspirational.
To hear a story of someone truly inspirational go To The Moon & Back a story about local cyclist Dave Berning in Spokes Magazine. I remember meeting Dave a couple times on Chuck and Crista rides. I don't want to give away the surprising bits, but when Lance Armstrong was going through Chemotherapy, he tried to ride his bike once and got about a block down the street before he collapsed on the side of the road.
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This Guy Is A Criminal
This guy in Ohio, Terry Hoskins, has been in a long running court battle with his brother over a business. Along the way, Terry failed to pay his taxes and the IRS put liens on his business. It appears that the IRS is seizing his business and putting it up for auction. The bank, attempting to recoup some of the funds they loaned Terry for his business has decided to foreclose on his house. Terry makes it sound like he did not pledge his house as collateral for those loans, but I'm guessing he did.
Terry bulldozed his house to the ground to send a message to the banks that were foreclosing on him. The message appears to me to be, "I am a crybaby loser that doesn't like to pay my debts, If you loan me money in the future, I can not be trusted to pay it back."
Disturbingly, this trend appears to be taking hold in America today. Here is a CNN article in 2008 describing people walking away from their mortgages. Here is a recent New York Times Article putting forth an argument for walking away from a mortgage...
I can understand someone walking away in a situation where there was fraud on the part of the mortgage company, there was a lot of that apparently going around right before the bubble burst, I can even see someone walking away if there was a medical issue or job loss. Apparently, there are people out there, who have the money to pay their mortgage but their house has lost value and they would rather walk away from their mortgage than pay it, so called "Strategic Defaults". I have a hard time understanding an adult, signing his/her name on a contract, and then reneging. This person wanted money from a bank so they signed a document stating they would pay the bank back. I've mostly bought new cars and they depreciate the second they leave the lot, I don't abandon them just because they've lost value. I just don't get it.
What happens going forward when people cannot be trusted to pay back a loan on a massive scale? Are there any consequences other than tighter lending standards and higher costs to borrow?
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Clair Is Not A Match
I got the news yesterday that Clair is not a match. Every person has 6 Antigens. You get 3 from your mom and 3 from your dad. The three antigens I received from my mom are not the same three antigens my sister received from my mom.
Since I received a transplant from my mom, my body developed antibodies to the 3 antigens of hers that I wasn't born with, the three antigens that Clair got when she was born. So, not only are we not a match, but my blood reacts to hers based on the antibodies I have developed.
Heather is getting tested now, the odds that we are a 6 out of 6 antigen match are the same (roughly 25%), but since I just came up Snake Eyes on Clair, I'm feelin' lucky.
Separately, I talked with Dr. Howard (Nephrologist) this week. He just completed reviewing the 2 year data on Belatacept and he's not convinced that "Bela" will be the solution for me. He's thinking that early withdrawal from Prograf (meaning they drop me down to 1 mg Bid quickly) will give me enough protection from rejection while not inducing the nephrotoxic side effects that accompany higher doses. That dichotomy is hard to wrap my head around; I need the drugs to stop rejection, but the drugs are toxic to the kidney.
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My BLT Drive On My Computer Just Went AWOL...
"...and I've got this big project due
tomorrow for Mr. Kawasaki, and if I don't get
it in, he's gonna ask me to commit Hari
Kari...Yeah, well, you know these Japanese management
techniques."
Dade Murphy AKA Zero Cool AKA Crash Overide "Hackers"
Toyota just expanded the recall list and now there are problems with the Prius...Me thinks there will be several Japanese businessmen committing Seppuku soon.
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Lesson Learned
I'm amazed I'm still alive...At the start of dialysis yesterday, I weighed 76 kilos. I asked them to take off 5 kilos to see if we could find my actual target weight. Yes, Dialysis is all about trial and error. With about an hour to go, I started cramping. I asked the Tech to stop the fluid removal, which she did, temporarily it seems. The cramping got worse with ten minutes to go and I realized that the machine was still taking fluid off.
Since my blood pressure had been high for a couple months, I was afraid that hitting my target weight would drop it to normal, which would feel really low to me. I asked for fluid. My weight at the end of treatment was 73.3 kilos (since I was still cramping, we decided to put my target weight at 74 kilos). That's 74 kilos with shoes, so it's about a kilo below my weight from the hospital on Tuesday.
Back in November when I was having the most problems with blood pressure and hospital visits, I was going up to 84 kilos between treatments. That's 10 kilos above where I should have been.
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One More Hospital Visit
I had fluid in my lungs Monday night...so I went to the Emergency room. They ran tests through the night and they scheduled me for early morning dialysis. The treatment session barely started when the technician (Winny) smelled something funny. When the smell reached the Nurses' station, she decided to terminate my session. She was pretty sure the smell was coming from the water purifier and not the dialysis machine. As she was taking me off the machine, the water purifier made a noise like it was shutting down, then sprang back to life. Yipes.
I had to wait for WALT to finish with another patient and he came down with the alternate equipment. Dr. Nazzal came in and said "take him down until he cramps." I was only 1 kilo over my target weight, but WALT was told to take off 5 kilos. After the treatment I weighed 74 kilos, my blood pressure was pretty close to human normal, so my target weight was way off. Since I didn't cramp during the treatment, I'm probably still above my 'real' target weight. Yesterday, one of my blood pressures was 122/77. I haven't had a pressure that low in months. Once I find my true target weight, my blood pressure should come down to the point where I don't need blood pressure meds.
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Denied
We got the news yesterday that my dad's kidneys are not suitable for transplantation. My sister is still willing to go through the process, so hopefully the testing will begin ASAP.
In the meantime, my Nephrologist decided awhile back that he would only cover me for 30 days, we thought that would be enough time for me to get a transplant, but that is now unlikely. Since the Davita clinic I now attend is restricted to my nephrologist's practice, I'll have to switch clinics when I switch back to my old nephrologists (Metropolitan Nephrology). It means a longer commute...roughly 25 minutes each way, but hopefully it won't be for long.
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